Back on the Infertility Train

So I apologize in advance because this was an overdue post in keeping you up-to-date in where we are on our journey (or should I say re-journey, journey Part II, journey to #2, re-mix journey 😂).  Regardless of what we want to call it , I already feel like I’m right back on the infertility train.

To refresh your memory, it took a little over a year of hormone therapy for my husband before we could proceed with TESE and align it with an IVF cycle. After getting pregnant with our son and then his glorious arrival, my husband stopped all medications and I never pressured him to follow-up or continue taking them because let’s face it-this shit sucks. And we were in a happy place with a well-deserved hiatus from needles, shots, bloodwork, doctors appointments, result phone calls, insurance appeals, and so on. Do I regret it-a little bit because now it’s like starting back at square one, but it’s what we ALL needed.

So here we are at square one. Last summer we began discussing when we’d take the big leap to hop back on the bandwagon. My husband casually told me he was going to make an appointment after his birthday. That was last July. His birthday came and went. Then so did mine. Our 8th anniversary passed and so did our son’s second birthday. He didn’t want to discuss it; I never knew the right time to revisit it and randomly I decided to make an appointment for him at the urologist in November to get the ball rolling. Well two cancelled appointments and five months later, he finally went the day after Easter.

I was pleased that rather than prolong the inevitable with analyses and bloodwork, they immediately started him back on his regimine. I figured last time they had to find the formula that worked and this time they knew that from the start so we are ahead of the game, right?!? 😳 Is there even such a thing in Infertility? I guess not because no sooner than the prescription was submitted, I was already running into issues. Three different medications were being prescribed from two different pharmacies. One was at a local pharmacy which I found odd because basically any controlled substance is foreign to them. But I assumed that the PA must’ve prescribed it there for a reason, possibly insurance-related. That was my first mistake-assuming.  Four physical attempts to get it, my husband’s word that he knew how to reconstitute it, the doctor’s confirmation that he could actually do it himself, and countless back and forth between the doctor’s office and the pharmacy later, we finally received the first med, HCG. It’s an 11-day supply mind you.  So last month I had to call to re-fill and pick it up 3 times.  Ya know, since I don’t have anything else to do.  About a week after, the pill, Arimidex, arrived by mail and I figured I’d give the follistim a little more time. I thought I’d demonstrate some patience and faith that it’d actually get here. Again, I realized that it could never actually work that way so I began the dreaded game of being transferred from one “patient advocate” to the next.

It’s being processed ➡️ We don’t have that patient’s name in our system ➡️ You can only get these meds through Freedom Pharmacy according to your insurance ➡️The doctor has resubmitted it to that pharmacy ➡️ Oh sorry ma’am this hasn’t been processsed because we couldn’t get ahold of you. The doctor gave us their # not yours. ➡️You should be all set. ➡️We need a a prior authorization from the doctor. ➡️The doctor faxed the prior authorization. ➡️We haven’t received anything from the doctor according to our notes. ➡️Your husband has to go for bloodwork in order for them to approve this. {👆🏼 Basically insert tears here because all of this time wasted and now the battle of getting him to quest for bloodwork} What the $&@”!? what? Like shouldn’t someone have known this 5 weeks ago when this was prescribed? Oh and ➡️ We need a separate prescription for the needles and syringes…and another co-pay of course 💸💸💸.

So basically more than halfway to our next follow up appointment, hours upon hours of time gone from my life waiting on the other end of a doctor/pharmacy/insurance call and we are still one medication short.  This is what infertility looks like. On top of dealing with all of the other facets of infertility, there’s always this. I was on the verge of losing my shit and breaking down into tears on the phone with the last phone call. So much so that she asked to put me on hold because she felt badly and didn’t know what to say. Patient advocate? Nobody seems to be advocating for the patient or even remotely helping to make any of this process any easier. I said it the first time around and this very early onset has proven once again that it’s like a part-time job calling/dealing/following-up with the pharmacy/insurance/doctors 24/7. On a positive note, my two and a half year old can now spell the first half of our last name from hearing me repeat it so many times.

This ain’t for the weak is right. You have to be so efficient, so on top of your (and everyone else’s) game all the time in order to keep things together, when physically and emotionally you can barely keep the lid on the pot. And that -all in addition to everything else thrown your way-life, pregnancy announcements, the latest fertility diet trends, AF arrivals.

As we have re-boarded the train I feel so grateful that there are so many others aboard with us. The head nods, comments, other raw stories about what this experience entails are validating and somehow knowing you’re far from alone in this makes it a little easier. So far, I’ve laughed, gotten angry, and even shed a tear that it has to be this difficult, but I know firsthand how worth it the final destination is.

 

The Day We Put the Crib Away

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//disclaimer: don’t worry, I never put him in there with the bumpers//

By now you’re familiar with the crazy deadlines and plans that are unavoidable in my head and in being open about this I’ve come to learn I’m not alone.  So it should come as no surprise that getting rid of Mikie’s betrothed “wuby” and saying goodbye to the “cribby” was imminent. Awhile back I had decided that we would do this simultaneously. Call me insane. Maybe ruthless. Or possibly guilty of lazy parenting. Hear me out before you decide. My rationale was both of our sleep was going to be effected so why deal with that on two separate occasions. Call it what you may, but it seemed logical to me. I spent weeks upon weeks prepping him for the departure from his pacifier and when the time finally came it really was heart wrenching to see him take a little suckle of the three remaining”wubys”before parting with them. He changed into his new PJ’s, became acclimated with his big boy boat bed and even gave it a few test runs while our immediate families were over. When it came to finally going to sleep for the night, he didn’t make any mention of the wuby.  It turned out  it was transitioning out of the crib that was a lot harder than anticipated…for us both.

We reminded him of the new Paw Patrol toy he got for going in his big boy bed, gave gave some extra minutes for playing with some toys now relocated in his room, and a few reassuring hugs, but the tears continued to be shed for his “cribby”. It wasn’t until I went into a long rambling to explain how he was still sleeping on the same mattress as his crib that he could be consoled. I explained what the crib meant to us before he was born, when he was just born, as he grew and now outgrew it. As he became reassured that he was still safe, he drifted off to sleep all while my head became flooded with what it meant that today was the day we put the crib away. The tears poured uncontrollably from my eyes, in a way I’ve never experienced since becoming a mom.

Before the crib, I thought of the countless nights spent sobbing silently at the edge of the bed while still dreaming of what that room would look like as a nursery. I had picked out the crib during one of the many sessions I spent scouring nursery designs and envisioned how it would be the focal point of the room.  Picking out the crib and its adornments somehow kept me hopeful that someday it’d come into fruition.

When we eventually got pregnant, the crib was the first real purchase we made for baby. It was so symbolic that this was actually happening for us-that it was actually our time. It was the first piece set up in the nursery and Mike used to read to my belly as we rocked and stared at the wrought iron frame. There was something so pure, something so relieving about seeing a crib finally in there.

After coming home with our son, the crib became even more meaningful. We had our first scare, the initial night we put him in there to sleep.  Once we were all ready for him to permanently sleep in there, we began our nightly rituals.  Frequently, when he was sound asleep, we’d tip-toe back in there to hold him in our arms in complete adoration.  He resembled an angel as he slept so peacefully, coolie up, each night.

He grew and grew and grew until he would try and lift one leg over the side and we knew the end of the crib was soon.  Eventually, as he became a toddler, it became filled with blankets and snuggly stuffed animals rather than that bare space when he was just an infant.  It became his place, a safe-space to cool-down, unwind, and regroup from time to time.  I’d open the door to give him one last peak before bed and seeing him in there would remind me of my abundant blessings.  I would think back to those days when I longed to see a sleeping baby in there and how those dreams I had so long ago, had come true.

Yet, as I laid there that night beside him it wasn’t just the memories that had me overcome with emotions.  It was also what putting the crib away meant.  In the same way I hadn’t prepped Mikie for the transition, I hadn’t prepared myself.  I wasn’t sure if disassembling and storing the crib that day was an “I’ll see you again soon” or “goodbye forever”.  I’d imagine for any parent this is a hard nut to swallow, but it can be even more upsetting when it’s not your call to make.  Would we ever again be setting that crib up to welcome another baby into our home and hearts?    Would I ever again be holding onto the crib bars, swaying  while carrying a new child in my womb?  Would I ever again spend sleepless nights consoling an infant, gently rubbing his or her back as I hummed a familiar tune?  Would we ever have the chance to pick up a baby from that crib again in the middle of the night just because we craved his or her touch?

The day we put the crib away was not just closing a chapter in Mikie’s life. It may also have been closing the door for good to ever having those experiences again.  Like my innocent two-year old, the impact of what putting the crib away meant was unforeseen.  However his resiliency has left me in awe.   Never knowing if you’ll have this time again, makes you cherish every precious moment as they come, and might possibly be why I am laying down in his big boy bed every night to put him to sleep 😉.