Back on the Infertility Train

So I apologize in advance because this was an overdue post in keeping you up-to-date in where we are on our journey (or should I say re-journey, journey Part II, journey to #2, re-mix journey 😂).  Regardless of what we want to call it , I already feel like I’m right back on the infertility train.

To refresh your memory, it took a little over a year of hormone therapy for my husband before we could proceed with TESE and align it with an IVF cycle. After getting pregnant with our son and then his glorious arrival, my husband stopped all medications and I never pressured him to follow-up or continue taking them because let’s face it-this shit sucks. And we were in a happy place with a well-deserved hiatus from needles, shots, bloodwork, doctors appointments, result phone calls, insurance appeals, and so on. Do I regret it-a little bit because now it’s like starting back at square one, but it’s what we ALL needed.

So here we are at square one. Last summer we began discussing when we’d take the big leap to hop back on the bandwagon. My husband casually told me he was going to make an appointment after his birthday. That was last July. His birthday came and went. Then so did mine. Our 8th anniversary passed and so did our son’s second birthday. He didn’t want to discuss it; I never knew the right time to revisit it and randomly I decided to make an appointment for him at the urologist in November to get the ball rolling. Well two cancelled appointments and five months later, he finally went the day after Easter.

I was pleased that rather than prolong the inevitable with analyses and bloodwork, they immediately started him back on his regimine. I figured last time they had to find the formula that worked and this time they knew that from the start so we are ahead of the game, right?!? 😳 Is there even such a thing in Infertility? I guess not because no sooner than the prescription was submitted, I was already running into issues. Three different medications were being prescribed from two different pharmacies. One was at a local pharmacy which I found odd because basically any controlled substance is foreign to them. But I assumed that the PA must’ve prescribed it there for a reason, possibly insurance-related. That was my first mistake-assuming.  Four physical attempts to get it, my husband’s word that he knew how to reconstitute it, the doctor’s confirmation that he could actually do it himself, and countless back and forth between the doctor’s office and the pharmacy later, we finally received the first med, HCG. It’s an 11-day supply mind you.  So last month I had to call to re-fill and pick it up 3 times.  Ya know, since I don’t have anything else to do.  About a week after, the pill, Arimidex, arrived by mail and I figured I’d give the follistim a little more time. I thought I’d demonstrate some patience and faith that it’d actually get here. Again, I realized that it could never actually work that way so I began the dreaded game of being transferred from one “patient advocate” to the next.

It’s being processed ➡️ We don’t have that patient’s name in our system ➡️ You can only get these meds through Freedom Pharmacy according to your insurance ➡️The doctor has resubmitted it to that pharmacy ➡️ Oh sorry ma’am this hasn’t been processsed because we couldn’t get ahold of you. The doctor gave us their # not yours. ➡️You should be all set. ➡️We need a a prior authorization from the doctor. ➡️The doctor faxed the prior authorization. ➡️We haven’t received anything from the doctor according to our notes. ➡️Your husband has to go for bloodwork in order for them to approve this. {👆🏼 Basically insert tears here because all of this time wasted and now the battle of getting him to quest for bloodwork} What the $&@”!? what? Like shouldn’t someone have known this 5 weeks ago when this was prescribed? Oh and ➡️ We need a separate prescription for the needles and syringes…and another co-pay of course 💸💸💸.

So basically more than halfway to our next follow up appointment, hours upon hours of time gone from my life waiting on the other end of a doctor/pharmacy/insurance call and we are still one medication short.  This is what infertility looks like. On top of dealing with all of the other facets of infertility, there’s always this. I was on the verge of losing my shit and breaking down into tears on the phone with the last phone call. So much so that she asked to put me on hold because she felt badly and didn’t know what to say. Patient advocate? Nobody seems to be advocating for the patient or even remotely helping to make any of this process any easier. I said it the first time around and this very early onset has proven once again that it’s like a part-time job calling/dealing/following-up with the pharmacy/insurance/doctors 24/7. On a positive note, my two and a half year old can now spell the first half of our last name from hearing me repeat it so many times.

This ain’t for the weak is right. You have to be so efficient, so on top of your (and everyone else’s) game all the time in order to keep things together, when physically and emotionally you can barely keep the lid on the pot. And that -all in addition to everything else thrown your way-life, pregnancy announcements, the latest fertility diet trends, AF arrivals.

As we have re-boarded the train I feel so grateful that there are so many others aboard with us. The head nods, comments, other raw stories about what this experience entails are validating and somehow knowing you’re far from alone in this makes it a little easier. So far, I’ve laughed, gotten angry, and even shed a tear that it has to be this difficult, but I know firsthand how worth it the final destination is.

 

One thought on “Back on the Infertility Train”

  1. Wow! This post is eye opening! If anyone can navigate and prevail in this crazy system it’s you and your little fam.

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